Friday, June 4, 2010

Seeking a CURE for my Cushings Disease

Well, I had Gastric Bypass surgery this past Oct. 23, 2009 because all of my doctors told me that I was FAT and that Cushings Disease is too RARE... 3 weeks later, I was finally diagnosed with that RARE disease...

So, after many more tests, a MRI, 2 CT Scans, the scary IPSS procedure (that was undeniable), I had Transsphenoidal Pituitary Surgery at UAB's Kirklin Clinic with Dr. Kristen Riley on April 7, 2010. Sad to report, it was unsuccessful.

As of yesterday, I have changed doctors. Dr. Bill Ludlam is my new Endocrinologist. He is a Cushings/Pituitary Disease Expert. He practices at Swedish Hospital in Seattle, WA...all the way across the country.

I am tentatively scheduled for a week of intense testing beginning June 28th. Then, if all goes as expected, Dr. Mayberg will perform my second pituitary surgery the following Tuesday, July 6th...Hopefully, this will give me the 'cure' that I have been begging/waiting for.